Welcome to
the Sarasota Area Dystonia Support Group
What is Dystonia:
Dystonia is a neurological movement disorder characterized
by involuntary muscle contractions, which force certain
parts of the body into abnormal, sometimes painful, movements or
postures. Dystonia can affect any part of the body including the
arms and legs, trunk, neck, eyelids, face, or vocal cords.
If dystonia causes any type of impairment, it is because
muscle contractions interfere with normal function. Features such as
cognition, strength, and the senses, including vision and hearing
are normal. While dystonia is not fatal, it is a chronic disorder
and prognosis is difficult to predict.
It is the third most common movement disorder after Parkinson's
Disease and Tremor, affecting more than 300,000 people in North
America. Dystonia does not discriminate - affecting all races and
ethnic groups.
Meeting
Location: Doctor's Hospital is located in Sarasota
Florida. Please view map link below for a map and driving
directions. To locate the meeting room, enter the main hospital
entrance passing the front desk to the right and make the first
left. The meeting room door is the first door located after the
Human Resource Office on the right.
Doctor's Hospital 5731 Bee Ridge Rd. Sarasota, FL
34233 941-342-1100 Meeting Time: Meetings are held
on the last Tuesday of every month with the exception of November
and December. Meetings promptly begin at 5 p.m. and run until 6:30
p.m. Should you have any further questions please contact
Gordon Beaubien (group leader) either via the contact page on our
website or call 941-966-2754
Meeting Format: We conduct a very low key open
discussion, sharing our challenges and successes regarding
how best to live with Dystonia. From time to time we have quest
speakers which help provide vital information on how best to deal
Dystonia. Family members are also encouraged to attend
meetings.
